Thursday, October 27, 2011 10:03 AM, CDT
Yesterday was Zackary's first day of appointments at the Mayo Clinic and he did great!
We started the day bright and early with a sleep-deprived EEG. He slept through the whole prep process of gluing electrodes to his head, which is something he normally doesn't like at all, so we were very proud of him! He slept through the majority of the test like he was supposed to and once Daddy and I finally got him to wake up we were able to capture a seizure cluster on the EEG, so that is good news. This allows the doctors to characterize the type of seizure they see on the EEG and also helps them see what part of the brain the seizure originates in.
Yesterday afternoon we met Zackary's pediatric neurologist, who we were very impressed by. She spent over 2 hours with us talking about Zackary's history and examining him, then discussing some possible treatment options we may try. We discussed the results of yesterday's EEG, but at the time she had not been able to compare them with his past ones. We are hoping to talk more about if anything has changed while he is admitted to the hospital after she has had a chance to review his previous EEGs. I will update more about what we learn from that later. The best news we heard yesterday is that this doctor does not think that Zackary needs to have a muscle biopsy just yet, until we get some more test results back. Then if we still do not have clear information we may want to have the surgery then, but we are very happy our little guy doesn't have to have that done at this point!
At the moment, we are waiting for Zackary to have an MRI and some other tests done. They accidently double booked the machine that Zackary needs to be tested on, so our 7:45 am MRI is getting to be later and later. The look on his face in the picture shows how happy he is about this :) Thank goodness he is doing a good job of staying asleep for the most part, because he is a hungry, grumpy little guy when he wakes up! He hasn't been able to have anything to eat since midnight because they will be using general anesthesia to sedate him for the scan and they will intubate him as a precaution since he is so little. The MRI is looking for any structural abnormalities that could be causing Zack's seizures. They are also going to take some blood and urine for analysis, and do another Lumbar Puncture to check for some possible genetic or metabolic causes. He has already had all of these done before and they came back normal, but it sounds like they are testing for some different things this time, so maybe after all of these tests we will get some new information.
I will try to keep updated as much as possible. Thank you to everyone for your thoughts and prayers. It means so much to our family to know that Zackary is loved and cared about by so many!
**EDITED**
They FINALLY took Zackary into the room to get his anesthesia and perform the MRI scan. We were told that this part would take at least an hour, then they will take him upstairs to a procedure room to do the lab work and the LP in a sterile environment. We were told shortly after that we will be able to go see him in recovery, so we can get him some food and love on him while they continue to monitor him before they let him leave. Hopefully we will not be waiting for too long, as we are all pretty impatient right now :)
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