Our Sweet Zackary

Monday, October 10, 2011 11:59 PM, CDT

Getting the hang of things...

 

Welcome to Zackary's page! I have been meaning to create on of these for a while now to help keep everyone updated on the happenings of Zackary's life. Right now I am watching him on the monitor, snuggled up in his swaddle blanket asleep in his crib. We had a pretty good week this past week. We had Zack's first set of pictures taken since he was born, and though it started out a little rough, he decided it wasn't so bad and that he would cooperate, well a little at least. The photographer was very patient though and seemed to get some good shots, so I am very excited to see the proofs tomorrow! We also went to Red Barn Farm in Weston with Zack's grandma and grandpa Combs. It was a little warm and windy out for October, but we had a good time. Zack really seemed to like the hayride; the pumpkins however, not so much :).

Things have been a little crazy lately with trying to figure out what is going on with our little man. We have already been through a number of tests, with even more yet to come. He is currently scheduled to have another EEG and MRI, as well as a muscle biopsy at Children's Mercy. We are still trying to get a diagnosis, and even though we have an amazing neurologist now, we are looking for some more help from other places. We are currently waiting for all of the behind-the-scenes stuff to get done so we can head out to Boston Children's Hospital. We are hoping that since they are the hospital with the best pediatric neurology clinic, they will be able to give us some answers and help Zackary feel better.