Friday, October 14, 2011 8:56 PM, CDT
Mayo it is!
Change of plans. We found out that Boston wanted us to come out for a consultation only; there would be multiple visits to Boston and it could take a while to get everything scheduled with them. This was very discouraging news for us because this is not the process we were told about and we were looking forward to going to the best, but we were offered a spot at another really great place that could get us in this month. So it looks like we will be heading out to Rochester to visit the Mayo Clinic!
As of right now the plan is that we will be there from October 25-November 3 going to appointments and having lots of tests and lab work done. They want to admit Zackary to the hospital on Halloween to put him on a continuous EEG, and he will be there for probably 2-3 days. After the hospital stay we will have a final appointment and then get to head back home.
Even though it is not what we had been originally hoping for, it is still an amazing opportunity to have some of the best doctors in the country meet Zackary and try to figure out what could be going on with him. I have heard great things about Mayo and we are looking forward to visiting it for ourselves! I love to travel but have never been to MN, so I am excited to see a new place! It is not the way we had planned to go on our 1st family vacation or to spend Zackary's 1st Halloween, but we are hopeful the trip will be worthwhile and maybe help us find some answers or more effective treatment options.
As of right now the plan is that we will be there from October 25-November 3 going to appointments and having lots of tests and lab work done. They want to admit Zackary to the hospital on Halloween to put him on a continuous EEG, and he will be there for probably 2-3 days. After the hospital stay we will have a final appointment and then get to head back home.
Even though it is not what we had been originally hoping for, it is still an amazing opportunity to have some of the best doctors in the country meet Zackary and try to figure out what could be going on with him. I have heard great things about Mayo and we are looking forward to visiting it for ourselves! I love to travel but have never been to MN, so I am excited to see a new place! It is not the way we had planned to go on our 1st family vacation or to spend Zackary's 1st Halloween, but we are hopeful the trip will be worthwhile and maybe help us find some answers or more effective treatment options.
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