Our Sweet Zackary

Sunday, October 23, 2011 11:19 AM, CDT

Getting closer....

Wow I cannot believe my little baby boy will be halfway through his first year on Tuesday!! These last 6 months have flown by, but I am so very thankful for every minute with our little man and I hope for many, many, many more to come! Tuesday is a big day for us as we will be leaving for Rochester that day also, in less than 48 hours from now! (Yikes I better get motivated to finish getting everything ready!)

I'm not sure if Zackary is just sensing our nerves about this trip or if it is from the way his epilepsy evolves as he grows, but his seizures have been changing a little lately. He normally clusters his seizures together, going back to back with little break in between, lasting around 5-6 minutes at the most lately, but usually only 3 or 4 minutes (which is a large decrease since he started the Ketogenic diet). But recently his clusters have been spacing out more, sometimes going 5 or 10 minutes between seizures, making it hard for us to decide if it is more than one set of seizures or one long cluster. Our typically happy, content little guy has also been more fussy than normal lately, so we are hoping they can try to pinpoint what new things are going on with his seizures, and if any of it is related to his irritability. Hopefully it is simply my little guy just getting some more attitude, not that he’s lacking any there this last month :). Mayo seems to be coming at a perfect time to help us understand the new changes better, and we have been told that when he's 6 months old the MRI should be able to reveal more as his brain will have grown so much since his last MRI at 5 weeks. We are hoping this is the case, and even more so that this test will be able to locate the source(s) of Zackary's seizures, but we know that may be a little bit of a long shot.

I will do my best to update about our schedule and any news we hear as we make our way through our long 10 day trip. Thank you to everyone for keeping Zackary and our family in your thoughts and prayers, especially as we head out on this adventure!